About MFTD Waiver Families
MFTD Waiver Families was formed in October 2011 when the state of Illinois began proposing changes to the program. Initially, the group was made up of a handful of parents of children in the MFTD Waiver, but over time, it grew to encompass about 100 families, or almost a quarter of the families in the program.
Our initial focus was to preserve the MFTD Waiver and prevent proposed changes to the program from occurring. In order to meet that goal, we created a website and Facebook and Twitter pages, and worked relentlessly behind the scenes to generate publicity for our cause. While it took two years, eventually we were able to save the MFTD Waiver and prevent negative changes from occurring.
Along the way, we realized that we had a lot in common, and most of us needed a place for both support and assistance. We interact daily through our Facebook group to help support each other. Many of us have met in real life, supporting each other through hospital stays, difficult times, and even the losses of some of our precious children.
We continue our dual roles of support and advocacy and hope that you will join us if you, too, are on this same path.
Please contact us for more assistance. We can help you apply to the program, choose a nursing agency, manage life with home nursing, maximize your benefits, and, most importantly, give you the support you will need through this process.