MFTD Waiver Families

Support for families of children in the Medically Fragile, Technology Dependent Waiver

NPCS Families Losing Nursing

We have been informed that almost all children receiving home nursing through the NPCS program who have been evaluated by the outside agency (Kepro) have had their home nursing hours eliminated. The vast majority of these children receive financially-based Medicaid and are children with medical needs whose needs are not great enough to qualify for the MFTD waiver. 

We would like to assist these families in any way possible. We recommend the following:

1) Submit a letter of intent to appeal within 10 days of receipt of your denial letter. If you submit an appeal within 10 days, you retain your current hours until the appeal has been heard and decided. Send your letter by certified mail to Illinois Department of Human Services, Bureau of Assistance Hearings, 401 S. Clinton, 6th Floor, Chicago, Illinois 60607. All you need to say in the letter is your child's name, that you disagree with the decision, and you intend to appeal the decision.

2) Save your denial letter and the envelope it came in.

3) Contact us at to get access to our appeal information. 

4) We will be helping to organize families. If the pattern we are currently seeing continues, we will help organize families to pursue legal action against the state.

Go Back

My terminally disabled son will be losing nursing care as of May 1st because of this same evaluation. He requires around the clock care that a parent cannot physically do without help. I called to make an appeal and all they said was someone will get back to me in the next 30 days. I was told to apply for DSCC or Dors Program, but my son may not qualify for those either. I'd be glad to help with whatever I can. #618-772-9036


My son was evaluated by the same company ad too is losing his nursing hours! The "tool" they used to evaluate his nursing services was missing tons of vital information as well. I started the appeal process and I also am demanding they make an exception and come out and re-evaluate with the correct information. I have a email with a link stating about thus ridiculous 10 day unwritten rule about the nursing hours so if you need a copy or need anything else please let me know! I will be glad to sue whoever we have to! Im sick of getting screwed from places just because of being on Medicaid.


I have submitted letters of appeal in behalf of myself and my disabled child and am awaiting a response to the termination of nursing services. I would like to be more involved in this matter. Please contact me and let me know what I can do to assist these families. Kim Elam


I have a medically challenged girl who has been denied her nursing services after the Kepro evaluation. I have phoned, faxed, and sent certified mail appealing this decision. If there is anything I can do to assist in saving these services please email or phone 618-664-2010